Archive for the ‘intervention’ Category
Autism safety not “in the bag”
To those who celebrated, I hope your Christmas was a blessed one. I also wish the same for a nine-year-old autistic boy at the center of a Louisville, Kent. school controversy when word got out that staff members at Mercer County Intermediate School stuffed Christopher Baker inside a duffel bag for allegedly acting out on Dec. 14. Chris is enrolled in a special needs program there.
The Kentucky Department of Education has no laws regarding restraint or seclusion, although an autistic Georgetown University student started a petition calling to fire the school employees responsible. The online petition had over 700 signatures at the publication date.
Thankfully, I can say I was never placed in a duffel bag when I was in school, or I’d probably be at the center of a lawsuit. However, controversies over how the education system handles autistic children still appear in mainstream news cycles periodically. With no uniform system in place for training on autistic students, coupled with varying levels of intervention behaviors chosen by education specialists, such actions are theoretically possible if educators are unprepared.
The biggest difficulty with the lack of a streamlined system are public school employees who do not understand the symptoms of autism. This does not suggest that all of them will choose actions that compromise the safety of students, but if their patience is low, they will be more likely to exhibit an impulsive emotional response.
Bruce Schreiner of the Associated Press published the story, which was then syndicated on Huffington Post. The story is largely a reaction piece that interviews Christopher’s mother (the school cited confidentiality laws and refused to comment on the incident specifically), the Georgetown student who started the petition to fire school employees, and a former teacher who blogs about autism issues.
Generally, controversial stories revolve around what two parties are thinking, as reporters either on deadline or lacking journalistic intuition consider getting both sides of a story satisfactory. Schreiner goes one step deeper, researching the larger public’s response to the incident. While more sources may not change the tone of a “he-said she-said” story, but just as surveys decrease their margin of error when their sample size increases, quoting subjects not involved in the center of an altercation provides a better consensus of the situation’s brevity. As a result, readers will more likely get the idea that what the school did to Chris would violate rules or laws in other states.
Obtaining outside sources also develops a well-rounded story. When facing controversial topics, the “defendant” is often hesitant to speak either in an attempt to hide guilt or to control damage. Reporters shouldn’t be “out to get them,” but having a neutral go-to source to spell out an event’s significance will offer analysis or details that will likely be skipped by both the accuser and defender.
Odds suggest a follow-up story will be found on Huffington Post or the Associated Press if Mercer County School reaches a decision, but until then, the story highlights what all of us could add when taking the effort to expand the source pool.
Policing the integration of autistics
Our latest story is part reporting, part editorial hailing from our neighbor to the north, Canada. Michele Mandel covers an incident at the Fairbank Memorial Day Care Centre where Toronto Police are under fire from autism advocacy groups for their July 28th handling of a nine-year-old boy with Asperger’s Syndrome who had to be physically restrained after throwing a tantrum. Police handcuffed the boy for five minutes before the mobile crisis intervention team arrived and calmed him down. While autism groups protest that less drastic restraint measures could have been employed, police say the boy was a danger to himself and waiting for the crisis team could have posed a safety hazard.
The boy blamed his tantrum on being bullied during the lunch hour. Mandel quoted him saying he holds his mother’s hand whenever he sees a cop car. Naturally, parents of autistic children are furious, at least according to Autism Ontario. The executive director says they offer training for law enforcement on handling people with mental disabilities, but few have taken advantage of the program unlike their colleagues in Ottawa.
I have some question on the date’s accuracy in the published article. If the incident did occur on July 28th, having an article published now would be horrendously ill-timed. There is a possibility the story has a typo and the incident happened on August 28th, which would better justify releasing the story on its publication date (August 30th). With parents as emotionally charged as they are, notwithstanding parents of autistic children, waiting an entire month before expressing outrage over a controversial situation makes little sense.
Regarding the story itself, law enforcement is almost always a hotbed when it comes to controversy. This doesn’t suggest an antagonistic relationship between journalists and police (you need to establish a positive connection if assigned to a crime beat), but material that suggests public service officials aren’t performing their job description makes for saucy news material. Generally, this controversy arises when police are seen abusing their role. In Mandel’s story, the argument is police not considering the well-being of the child with Asperger’s Syndrome who had to be restrained. When pursuing an event as it’s occurring, police have to be prepared for rapid responses to a multitude of situations to protect themselves and/or the people they intervene. The “gray area” illuminates how people who are trained to keep communities safe can adapt to the autism spectrum, as their emotional output doesn’t fall within expected norms. This story may spur Toronto’s law enforcement to seek more training, or lead to further coverage on public readiness to handle a population prone to mental outbursts.
On the story itself, I’m not familiar with the ethical standards of Canadian journalism, but the reporter appears to side with autism organizations and suggesting the response was mishandled. Mandel uses strong words and questions why less forceful measures weren’t used to begin with, creating the impression that Toronto police were the “bad guys” in the case. The discussion shouldn’t be about who’s right or wrong, but instead included for the ultimate concern of how an increasing number of autistic people throughout the world can be approached.
iLove the iPad (and always will)
Alesha Williams Boyd of the Asbury Park Press is the latest reporter to uncover the autism community’s love affair with Apple’s iPad computers. Several New Jersey school districts are purchasing iPads for special needs students for the upcoming 2011-12 school year, with a private school requiring families of students to purchase the mobile computers.
The mobility, aesthetics and the ability to install apps to personalize each system are a few reasons why iPads are such a hit for the mentally disabled community. The director of special services at New Jersey’s Marlboro Public School district credits Apple’s product for drawing autistic kids out from themselves. The iPad’s ability to provide a means of communication via screen images for autistic children is well-documented, but thanks to the app market, school districts are also using iPads to encourage autistic people to make eye contact. Even if such applications have a price tag (according to the article, some cost as much as $200), many still consider the iPad a marvel with its $500 list price compared to bulkier, bigger, more complicated devices that can reach four figures.
What about students with other disabilities? Boyd covers that segment in the first few paragraphs, reporting applications allowing students to organize their activities, thoughts and assignments (a boon for autistic children who adhere to routine), and apps that can vocalize text or translate the spoken word into text. Not enough? Settings on some apps can be adjusted to the type of touch students produce, and can also be rigged to challenge students to exercise their motor skills with different forms of touch.
I doubt this will be the last time iPad and autism blend in the same article, but future media coverage could become stagnant if future versions of the iPad aren’t considered revolutionary for the disabled population. Coupled with similar abilities from the iPhone and iPod Touch, Apple’s sister products, stories on the benefits of these devices will find difficulty creating new flavors for an audience that follows autism news via the Internet, where geographical boundaries are neutralized. However, the primary reason for future media coverage that could repeat itself is all about the audience. Similar stories to find a place on this blog originated from Houston and the Twin Cities area, so to assume New Jersey residents would know of those stories would be unwise. While this means using a search engine for stories on autism may produce carbon-copies published in different outlets, local organizations aren’t worried about similar coverage outside their market.
However, Boyd does show her readers the iPad’s potential outside of the autism community, where most media coverage in this topic is focused. Truthfully, the advantages of the iPad aren’t any major revelation these days, but Boyd does answer the call for communities who may feel overshadowed by autism coverage. Examining the benefits is useful beyond informing the audience for Apple’s sake. Since Apple releases new editions of their products on an annual basis, viewing its impact across multiple facets may assist them with improvements for future editions through app technology or hardware components.
I had to learn to communicate through more traditional computers since touch-based technology was far from wide use growing up. I can’t say I’m more or less fluent with computers than autistic kids who use iPads are, but I can predict school districts will eventually saturate their special-needs students with iPads when budgets and resources allow for the opportunity, and you can bet I’ll follow the news coverage generated from the implementation.
Autism doesn’t graduate
Yes, I’m back again after another hiatus, but I see some of you are still reading my site.
I’ll be exploring some articles I had stored up to discuss, including a lengthy article by John Richardson of the Kennebec Journal in Maine. The story is among a growing number of journalistic investigations reporting the response to the increasing autistic population. Maine is not immune to the effects, with 680 adults with autism or other disabilities waiting to get MaineCare funding for some level of services, a figure reaching $282 million this year. That’s a few zeros, but even with 180 on that list considered in critical need for health or safety concerns, the state can only move seven to 10 people per month when funding frees up, usually when older adults die. Even just four years ago, a high school student with autism could smoothly transition to adult services if the condition warranted such care. Now, residents in Maine and other states find themselves on waiting lists that can last for years. Complicating things is the lack of affordability for services, with day programs costing $20 to $25 per hour and full-time residential care running at least a $70,000 price tag.
Richardson’s story isn’t new, as the high cost of services is a repeated point of discussion in autism articles (recently explored in the Denver Post with Interior Secretary Ken Salazar’s granddaughter). Given the current economic and political climate, foreseeing a growth of these stories published can only be expected. Autism’s strain on families is another element making a return appearance in Richardson’s story, citing a 2010 story where a father and full-time caretaker of his autistic son killed both his son and himself. Naturally, we also see statistical evidence that autism is rising in Maine, with Richardson using data from the state’s public schools. Granted, those in Maine who spend most of their news consumption within state boundaries may not be aware of similar articles in the news timeline, but that doesn’t change the increasing occurrence of reports detailing how the public may potentially deal with autistic adults unable to function independently.
The story isn’t part of an elaborate scheme to rehash the same material in order to demand more autism funding from various sources. Instead, stories with parallel themes are usually the result of considering the outlet’s audience. A similar story in the West Coast may not have the same impact because of geographical distance. There’s also a chance reporters themselves are still developing fluency; autism carries a complex nature, but its penetration may not be high enough for its own beat coverage that reporters give to topics such as politics, crime, education and sports.
Richardson is effective at spelling out the issue for readers of Kennebec Journal, balancing the recurring elements of concerned parents, data, and challenges as a result of said data. However, autism news readers likely understand by now that autism doesn’t suppress itself upon graduation. The community may ask for something deeper than localizing a previously reported story, but with the varying severity of autism combined with the uncertainty of progress offered by treatments, the adaptation of autistic adults could be one story where reporters won’t have an easy time digging further in the present.
Quest for autism’s “holy grail” engulfed by maze of treatments
As Andrew Wakefield continues to press forward with the vaccine link controversy (which is now being compared to other political debates where opponents repeatedly deny what almost all research suggests), the battle to address the autism spectrum in children found another metaphorical maze in Maryland. In a story originally published by The Baltimore Sun and syndicated by Los Angeles Times, a Maryland doctor sought to regain his medical license after suspension by the Maryland Board of Physicians. The doctor, Mark Geier, uses an alternative form of autism treatment with no scientific backing, injecting patients with Lupron, a drug approved to treat prostate cancer in men and endometriosis in women.
Geier believes testosterone is elevated in autistic children (and a study I discussed in my blitzkrieg of posts last month concurs with his opinion) and worsens the vaccine-related mercury toxicity they believe is causing autism in children, which is why he uses Lupron, as the drug suppresses testosterone production. However, the Maryland Board of Physicians reported that Geier placed children at risk with improper diagnoses and misrepresenting his credentials.
Geier’s branch is small in the story’s “tree.” Frank D. Roylance and Meredith Cohn, the writers who penned this story, summarize a point previously covered in mainstream press coverage but quantify what is known inside the autism community: the slow pace of identifying causes and effective treatments for autism lead to a proliferation of unproven treatments that grow wildly in popularity (the gluten and casein-free diet is one example). 38,000 families participating in a database at the Kennedy Krieger Institute in Baltimore have reported 381 different treatments. Families use five treatments simultaneously on average, spending around $500 per treatment. Do the math, and that’s $2,500 a month and $30,000 annually. Compounding the problem, a source from Kennedy Krieger’s Interactive Autism Network says only 10 percent of autistic children are enrolled at IAN or other research studies.
Roylance and Cohn highlight the low percentage by including three parent perspectives. We hear from Alison Singer, who was featured in Autism Speaks’ Autism Every Day and is co-founder of the Autism Science Foundation. While she tried several alternative treatments for her autistic daughter, she now advocates any new treatment should seek for a scientific study. Other mothers shared their experience with alternative treatments, and ultimately refused some because they lacked scientific evidence.
Despite the small percentage of autistic children enrolled in research studies, data from the IAN project is helping identify widely-used therapies so they can be subjected to scientific testing. Although science is not always accepted (the vaccine controversy still burns despite a mountain of evidence disproving a link), finding treatments proven to work can reduce the likelihood of parents making irrational decisions about their autistic children. Based on Kennedy Krieger’s data, a lot of irrationality exists. With families giving their children an average of five treatments for autism simultaneously, even if those treatments mitigate the symptoms of autism spectrum disorder, there’s no way to decipher which treatment actually works. With the money and time invested in so many treatments without scientific backing, little discussion is needed to explain why researching treatments should be a priority.
As the Kennedy Krieger source states, telling parents not to pursue any interventions without scientific support is impractical. Instead, the goal is encouraging families to avoid rash decisions that lead to children receiving a multitude of treatments. Emotional responses are road blocks to such a strategy, and Roylance and Cohn use their sources to explain why logic is sometimes discarded: vulnerability is high when parents first learn of an autism diagnosis. Since most parents will instinctively fight for their child’s success, and many lack an understanding of autism when they first hear of the disability, their susceptibility to doctors claiming to have a solution increases.
Geier’s treatment and recent suspension were subjects of recent stories, as two links appear as related articles to the investigative story filed by Roylance and Cohn. Using people like Geier as a springboard to a deeper story is a commonly-used tactic when resources and news editors allow reporters to execute the strategy. Treatments for autism are ripe subjects for story exploration because supposed techniques have exponentially increased. Most individual treatments without scientific evidence aren’t usually covered in mainstream news. Even if a treatment allegedly works on an autistic child, that technique can only represent a theory, not fact. The lack of scientific proof in alternative interventions can leave reporters in a precarious position with an autism community eager for awareness. However, Geier’s recent coverage opened the door to this realm of the autism spectrum while allowing Roylance and Cohn to filter the story and not create an impression of advocating alternative therapies themselves. Thanks to their reporting, we learn why Geier and other doctors can gain popular support: many parents of autistic children are rarely at the forefront of finding answers. Explaining why few parents involve their children in research studies is difficult, outside of simple impatience, but the low percentage of children in research studies should not be attributed to laziness.
Roylance and Cohn don’t suffer from laziness either. Readers unfamiliar with Geier are briefed on why he’s in the news, and they use parental perspectives to validate the analysis presented by Kennedy Krieger sources on the proliferation of autism treatments. Readers on top of autism coverage also gain a new perspective from the parental point of view. While emotional volatility is almost a guarantee for parents who learn of their child’s autism diagnosis for the first time, that mental state is transferred to research, regardless of what choice is made with alternative treatments. Roylance and Cohn could also open another door by highlighting the lack of involvement of autistic children in research of treatments. They didn’t specifically list how to enroll in research studies, but other reporters could piggyback on that subplot.
Questionnaire could answer autism concerns earlier than before
CNN picked up a story originally published by Health.com reporting that a new study may help detect autism in children as young as 1. The study is a 24-item questionnaire that assesses a child’s ability to communicate via eye contact, sounds and gestures. Warning signs could then be noted, allowing children to receive treatment earlier than current models. The Health.com story lists the average age for a diagnosis at five years old. Although the lack of biological signs for autism can make diagnosing the disability tricky, the questionnaire takes five minutes to fill out and can be scored on the spot.
The checklist doesn’t identify autism spectrum disorder specifically, but will tell takers something is wrong, which may point to autism or another developmental delay. In the study, where 137 pediatricians in the San Diego area screened over 10,000 children, only 32 of the 184 children whose development was below normal were diagnosed with autism. However, 56 were diagnosed with a learning disorder and 9 had another disorder entirely. Overall, the questionnaire’s accuracy level from the study’s data pool was 75 percent.
While the questionnaire doesn’t add the long-awaited biological marker everyone in the autism community, the questionnaire showcased its potential with detecting delays in developmental skills. Although the accuracy rating may make some parents squirm, there may be some satisfaction with its versatility, especially when virtually all medical professionals stress intervention as early as possible. One reason for the accuracy rating may simply be who they screen. Infants and toddlers are far from developing their abilities with motor and communication skills, as opposed to five-year-olds, where deficiencies are easier to detect. Scientific and anecdotal evidence suggest symptoms of autism aren’t clear until a child reaches 18 months of age. While the screening doesn’t specifically evaluate infants under that age, there’s a risk from parents or caregivers making too much out of the questionnaire’s findings and preparing for a disability whose presence can’t be officially identified that early.
The story itself focused on the study’s findings, how they were procured, and its potential for widespread use. Unfortunately, without an author, gauging who contributed to the story is virtually impossible. Most stories will indicate if more than one writer published the article, but stories themselves aren’t structured in different formats when written by a host of writers. The structure of journalism doesn’t change for television, newspaper or magazine writing. Even if writers have a unique approach to writing a story, the editing process will streamline the final version.
Developments on this questionnaire will unfold over time, but the community will eat up almost anything that may give them an edge, even if a wild goose chase ensues.
Autism service dog leads own experiment
FOX affiliate KPTV in Portland recently published a story about an autism service dog who found himself at the center of an experiment. Jordan Givens, a 10-year-old autistic fourth-grader, has started bringing his service dog, a German shepherd named Madison, to Patterson Elementary School in Hillsboro. Although the Hillsboro School District originally disallowed Madison to sit with Jordan in class because they said Jordan was adequately achieving his goals in his individual education plan, they are now allowing Madison in Jordan’s classes to find out if the German shepherd helps Jordan function more effectively in school.
Wendy Givens, Jordan’s mother, already believes Madison is a metaphorical portal. She says Madison is trained in behavior disruption, which means he helps Jordan’s bouts with aggressions and calms his senses. The school’s principal says Jordan’s teacher is considering the dog’s effect on other students, adding that his classmates appear prepared to adapt Madison into their routine. The experiment also has the support of the U.S. Attorney in Oregon.
The story points out the continuing efforts to spread autism awareness throughout all communities. Normally, dogs aren’t allowed on school grounds unless there are mitigating circumstances. Usually, such circumstances involve physical disabilities, which autism is not. Recall that the disorder can be difficult to detect with the naked eye, so even if Jordan’s school district is aware of his condition, there’s a possibility the school district may not see what’s wrong with him, and that may have caused the small ordeal about allowing Madison in school.
Madison has served as the Givens’ service dog for three years, although we aren’t told much about the shepherd’s impact with Jordan. The story’s focus was why the dog wasn’t allowed in school, so it’s not surprising that little information about the bond between Madison and Jordan is divulged. TV news stories have short windows for stories, so unless they’re airing a longer feature, broadcast reporters can’t spend much time on topics related to but not about the primary theme.
Depending on who comes across this story, Madison may not be just the center of a local experiment, but a regional or perhaps national one. Approaching autistic students still leaves school officials and parents scratching their heads because of low data for accommodations outside of special education classes. The development between Madison, Jordan and his classmates could provide some insight on the success of additional resources.






