Visualizing a singular identity
Perhaps the most in-depth article I’ve read on autism since I began the blog. An article from the New York Times performs an extended look into the possibility of removing Asperger Syndrome and replacing it with simply autism spectrum disorder. A panel of 13 experts are evaluating autism and other neurological disorders for the new psychiatric diagnostic manual due in 2012. Their argument is that Asperger as a label is confusing and not very useful as psychiatrists shift from a “black and white” view of neurological disorders to a continuum with many levels of severity. Potential controversies are also discussed, as insurers, schools and researches all account for Asperger Syndrome. Australian psychologist Tony Attwood and Temple Grandin, America’s best-known autistic, also suggest keeping the term. Attwood’s concern is that removing Asperger Syndrome as a medical label may inhibit people on the spectrum from being assessed, due to the negative connotations of autism versus Asperger Syndrome.
This article highlights the controversies surrounding autism, from accounting for social setbacks and skills possessed by few others to constantly changing labels and the myriad of other health problems that often accompany autism (if only receding hair lines were included :-p ).
This is the first article to use percentages to explain how many kids have autism based on federal data. This is also the first article in some time that doesn’t provide the textbook definition of autism or Asperger Syndrome, but summarizes the disability in a way the mainstream can understand. I discussed the significance of both findings in a post I made in October reporting the government studies, suggesting the diagnosis rate was climbing. The New York Times may be considering the increase of awareness from the increase in autism stories and their reporters are electing not to define autism in the classic sense. The public is starting to catch on.
What this article also does is underscore the individuality within autism itself, an angle seldom seen in popular press. Most stories told through electronic media often group all autistic people together, not accounting for the abilities that astonish adults and bore playmates to tears. Autism Speaks’ Autism Every Day, released three years ago, is an example of lumping everyone to a single unit. With the proposed changes and almost certain debate forthcoming, we get to look into…GASP…differing opinions within the autism community. Some prefer keeping the Asperger name while others have lived comfortably with the autism label. Instead of a two-sided debate with a for and against side, the Times turns the story into a multi-perspective discussion with the scholarly medical side blending with the real-life side, a useful approach since the autism debate nearly matches autism itself in complexity.
On the surface, the article reports a very detailed discussion and debate over a possible exchange in terminology when diagnosing autism in kids and adults. Beyond that could be the beginning of the next stage of social discussions surrounding autism: self-identification. Detailed in modern media including True Blood and X-Men 3: The Last Stand, autistic people with enough cognitive abilities to process thoughts are now asking themselves who they are and who gets to decide how they live. This is no different from anyone else or any other group subjected to the prejudices of privilege and 20th century thinking, but the New York Times story is the first to profile what could be an autistic identity crisis.
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