Ari Ne’eman, “wired” and unfiltered
Two things became clear to me as I read a Q&A by Steve Silberman, a contributing editor for Wired magazine, with Ari Ne’eman, now the first openly autistic White House appointee in the country’s history. First, my blog is drawing more eyeballs than I thought. A friend of mine, who runs the blog site swirlspice.com, linked me to a MinnPost story via Twitter. MinnPost, in turn, linked the original story on the Wired website. I’m aware people do visit my site, since I can track how many visits are made in a window of time, but people I’m connected with are now just starting to send me links to news stories involving autism.
Second, Ne’eman and I appear to notice the same patterns in the treatment of autism in society, even though we’ve never met and likely lack parallels in our examinations of the disability. That doesn’t qualify one of us over the other, our paths merely lie in different directions.
The last time I talked about Ne’eman, he was still awaiting a Senate holdout blocking his confirmation. The hold, which can be placed anonymously, was later dropped, but not before controversy swelled within the autism community as divisions still exist on adapting versus curing autism spectrum disorder. Specifically, Ne’eman’s drawn flak because of his functionality, with critics suggesting he’d overlook the plights of more severe autistic people. Ne’man’s philosophy also ignited flames, with his belief that more resources should be devoted to helping autistic people adapt instead of finding a cause or cure to prevent the condition in future generations.
I won’t discuss much about the Q&A itself, since the only true intervention from the reporter is what questions were included in the story and how many quotes were included. However, Q&A sessions are no less credible than crafted stories in magazines and newspapers. A Q&A gives the audience an unfiltered discussion, where the reporter and viewer become listeners.
Wondering about what patterns him and I noticed? Ne’eman was asked about autism’s cultural shift from invisibility to media darling in the 21st century, and his response was that a special skill or astonishing success story was needed to gain representation in media (he discusses the other category of autism stories in other questions, where the picture is far more grim). His recommendation? Learning about autism doesn’t have to come from himself, Temple Grandin, or John Elder Robison (author of Look Me in the Eye), since so many exist in educational and workplace settings.
While I cannot measure individual experiences with autism outside of my own, reading the Q&A does highlight autism’s complexity and summarizes what may be a future focal point for journalists covering autism.