The Autistic Journalist

Using words to explain the mind

Posts Tagged ‘Lives Lost to Autism

Examining lives lost to autism

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While stories of deaths involving the autism spectrum are rarely reported outside of local affiliates, there’s no secret to the potentially stressful challenge that lies for caregivers of autistic people, particularly those on the “low-functioning” end of the spectrum, where symptoms and abnormalities are more severe, robbing the ability to function effectively from its inhabitants.

Now, thanks to a story in the Colorado Springs Gazette, online readers can access a blog that documents deaths and the autism spectrum. Some are autistic people killing others, some fit a classic issue of children wandering off and succumbing to the elements, unaware of their dangers. However, several are murders or murder-suicides, and most parents (only mothers were used in the story, another conventional tactic I’ve noted when family members are interviewed for autism coverage) can relate to the intensity of raising an autistic child, although none of them condone the actions of parents who killed their autistic children.

A few elements in this story appeared in my coverage of Saiqa Akhter murdering her two autistic children and in general research: parents, mothers in particular, developing depression and social isolation because resources are lacking and internalizing fears about being judged or ostracized by other parents who believe autistic children are simply brats. Collectively, all the sources in the story suggest more resources need to be available for overwhelmed parents, while parents in despair should find an initiative to get help.

I can cite evidence from my documentaries on the subject that not everyone will take a villainous attitude toward parents of autistic kids. In one episode, I profiled a St. Paul couple who are members of the Autism Society of Minnesota and a Stillwater family whose mother bands together with other moms of autistic kids, dubbing the group “The A-Team.” While there’s no linear progression of development for autistic people, getting help definitely prevents social or mental side-effects that lead to drastic measures.

The only mystery about preventing autistic children from dying at the hands of their parents is why this issue isn’t getting much national coverage. Suggesting election cycles is accurate, but short-sighted since other news is covered leading up to major election year. Another possibility is the low percentage of autistic people in relation to the country’s population. While the population rises, a lack of understanding about the condition remains. In fact, disabilities lag behind illnesses in terms of comprehension, which is why you’ll see a lot of mainstream support for events that fight diseases more often than disabilities. That doesn’t mean disabilities are ignored, they simply don’t draw as much interest because the material isn’t as relateable.

While I ponder what the tipping point will be to highlight the issue of parents murdering autistic kids, this is one case where “blame the media” would be an unwise decision. Social awareness is key; symptoms of depression and isolation may show up for others to spot. Likewise, people who find out they’ll have to adapt with an autistic person can easily find resources through quick Internet searches. News coverage can highlight problems we may not be aware of otherwise, but proper journalists don’t take a direct role in influencing stories. The audience plays that role with their reaction to coverage.

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Written by TheSportsBrain

October 9, 2010 at 5:57 pm