The Autistic Journalist

Using words to explain the mind

Posts Tagged ‘MMR vaccine

In face of ridicule, Wakefield fights for his theory

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Photo by Shaun Curry, Getty Images

The start to the 2011 calendar year was rocky for Andrew Wakefield, whose study was declared false by British journalist Brian Deer, who published several stories in the British Medical Journal highlighting Wakefield’s alleged false claims and unethical practices. Deer compared Wakefield, who lost his medical license after his study linking M.M.R. vaccines to autism was retracted last year from the medical journal Lancet, to a religious leader who occasionally uses the smoke and mirrors technique to goose the faith of his followers.

Deer’s investigation was one of many facets spilled out in an article by Susan Dominus for The New York Times Magazine, a longhand form of the country’s most recognizable newspaper. As with any form of magazine writing, the stories take on the form of novels and are more descriptive, too descriptive for me to summarize in shorthand form. That’s no reason to turn away though, as Dominus provides an insight on Wakefield no American reporter has offered before. Through her journey interviewing and shadowing Wakefield, we learn that Wakefield himself didn’t claim proof that M.M.R. vaccines were causing autism, but that didn’t stop his concerns from spreading worldwide the same way viruses spread through the body until its defense mechanisms can suppress it. If recent media coverage is any indication, Wakefield became one of the most reviled doctors of his generation, receiving blame for starting a panic that led to the resurgence of diseases long squashed by vaccinations.

Despite the wave of damning evidence which has led him to close himself professionally, he still draws followers, as 250 attended a discussion he conducted regarding his work. His supporters view him a hero when nearly everyone else paints him as a villain. Wakefield himself believes public health officials and pharmaceutical companies pay bloggers to post vicious material about him. Throughout the story, Dominus compliments Wakefield’s persuasive skills, even when the audience knows better. Wakefield continues to fight and promote his theory, with Dominus adding that the more he has sacrificed (he resigned from London’s Royal Free Hospital following his publicized concerns and now lives in Austin, Texas), the more he must believe in his theory, or all efforts will be rendered useless. Ironically, medical experts suggest aggressive studying of the M.M.R. vaccine following Wakefield’s 1998 media splash means the vaccine is one factor than can be ruled out in a disability still shrouded by mystery.

Dominus assures the readers that she isn’t necessarily siding in Wakefield’s camp, but she does give him an opportunity to present his case as other reporters who interview Wakefield quickly write him off as a discredited liar. By not falling into the dramatic trap that can detract storytelling from other outlets, readers of this story see why Wakefield continues his battle for reputation with his supporters waiting in the wings to back him up. We even learn a few personal anecdotes about his life before gaining his notorious status in Great Britain and most of the United States.

In order to obtain the behaviors, characteristics and traits Dominus lists regarding Wakefield, interviewing goes well beyond the simple press conference or brief one-on-one interview. Traveling with the source and immersing in the source’s comfort zone is common, and more relationship skills are needed to ensure you get the story requested in your assignment. In the case of Wakefield, encountering Dominus and her approach may have been more comforting since she offered a value other reporters decided to box away, even though she was no less neutral than shorthand writers covering the Wakefield saga. Ultimately, Dominus reveals the basis of Wakefield’s support comes from parents seeking answers who credit him or his associates for trying a possible solution, even if the strategy is cautioned by others (including casein and gluten-free diets, a media craze for a short time).

Magazine-style writing allows writers like Dominus to include more details and examine many subtopics of a story that traditional news articles can’t provide because of space or time constraints. Her observations may not remove Wakefield’s “villainous figure” in the eyes of the medical community, but just as the Marvel Comics movies emphasize human elements within their villains, Dominus’ story leaves Wakefield less clear-cut than previous mainstream glimpses portrayed him.

Autism no fraud, but controversial study declared false

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Autism’s biggest firestorm refuses to cede its flames, as The Associated Press reports an analysis of the now-discredited study linking vaccines to autism published by Andrew Wakefield was based on doctored information on how the children were involved.

Brian Deer, a British journalist who made the discovery, learned that five of the 12 children in Wakefield’s study had documented developmental problems prior to receiving an MMR vaccine, which Wakefield claimed was the cause of autism in children and led to panic among parents of autistic children. Deer also noticed that all cases were misrepresented after comparing data from the children’s medical records and their parents.

As you may have guessed, a huge reaction among the autism community has erupted following the report. Wakefield’s dishonesty ruling last year, from the General Medical Council, was the first bombshell that brought pause to the belief of a link between vaccines and autism. In fact, 2010 was a significant year in terms of addressing the controversy with vaccine safety. While the study is no longer considered credible, immunization rates for measles, mumps and rubella haven’t fully recovered from their lows of the late 1990s, and outbreaks of diseases once thought to be eradicated have cropped up where immunization rates decreased.

However, this scientific debate persists because of emotionally charged reactions from both sides as they attempt to one-up each other to prove their argument is more valid. Fear of the unknown remains a powerful catalyst as humans often worry about things not necessarily within their control, which is one reason why this debate remains autism’s spotlight controversy. Naturally, it’s a perfect story for reporters to follow up because its energy level remains high. I’ll discuss one story that gauges the reaction from supporters of Wakefield’s study tomorrow.

By the way, you’ve just read my first blog post of 2011. After taking a hiatus to focus on other assignments, I’ve returned to continue discussing autism in the news and what it means for the news. 2010 was a big year for the Autistic Journalist, where daily hits increased from 4 in 2009 to 20 in 2010. For you mathematicians, that’s a 400% increase. Yeah, not much, but increased syndication in 2010 helped spread the word about The Autistic Journalist, and I want to thank readers for their continued support. I’m no expert, but I will not rest in my goal to go beyond the surface in exploring autism and its news coverage. 2011 will be an even bigger ride than 2010.

Correcting a 12-year-old mistake

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Photo by Steve Parsons, PA Wire

The medical journal The Lancet officially retracted the paper that initiated the vaccine-autism controversy after the General Medical Council’s decision that the controversy’s originator, Dr. Andrew Wakefield, was dishonest with his proceedings. The retraction means the study will no longer appear in their own and other publications.

Lancet editor Richard Horton retracted the paper, published in 1998, after he read the GMC’s findings. People in the science and medicine communities called for its removal before Horton’s decision, but Horton said he lacked evidence until the GMC concluded its investigation Thursday. Horton explains that his journal did the best it could to validate the research by peer-reviewing it, but couldn’t devote the resources to examine every case record or visit every lab.

The Guardian‘s story then recaps the original story of the GMC’s findings regarding Wakefield’s study that led him to suggest MMR vaccines playing a role in developing autism in children.

The report will add further evidence that no link exists between autism and vaccinations that we know about, but its retraction still won’t repair the damage caused by not vaccinating children. The story is essentially a development that occurred once the GMC made its ruling on Wakefield. However, this update does signal a progression with autism’s biggest controversy of the present. Without any evidence to fall back on, the argument linking autism and vaccines will likely lose some footing. However, this also means another controversy will get an open door to enter. No studies have been conducted regarding the gluten-free autism “diet,” with all evidence coming from anecdotes, and there’s still a lot of questions regarding the prevalence of autism within the Somali community.

Ultimately, this story shows that most of us (yes, even autistic people) still have much to learn about autism and its causes. The GMC ruling will help cross one theory off the list…a REALLY LONG list.

Written by TheSportsBrain

February 2, 2010 at 11:15 pm